Better Position For People Afflicted With Rare Diseases in BiH

Association XY, a non-profit organization and friendly youth center for that offers services in providing information, advice and education in the area of sexual and reproductive health, began in January 2013 the implementation of the project “Contribution to Strengthen Civil Society in Improving the Position of People Afflicted with Rare Diseases in BiH”.

During the implementation of the project, which will last 24 months, the Association intends to establish a strategic framework to improve the healthcare of people suffering from rare diseases in BiH. The Association also intends to work on improving the capacity of civil society organizations for partnership dialogue with government authorities to develop and implement policies and programs in the field of health care.

Partners of the XY Association that are assisting in the implementation of the project are: Youth Organization ‘Centar’ in Mrkonjić City, Helsinki Committee for Human Rights RS, Association of Representatives of Foreign Drug Manufacturers in BiH and the Coalition of Health NGO’s in Zagreb.

The expected results of the project are: Assessment of the situation and quality of life for people who are afflicted with rare diseases in BiH; development of a strategy on rare diseases for the FBiH and RS; development of capacity building of members of civil society networks through a series of trainings; exchange of experiences, expertise and good practices with a coalition of health NGO’s in Zagreb; development of strategic documents by members of the civil society networks; and conducting a public awareness campaign with the aim to increase the awareness of BiH citizens on rare diseases.

Association XY is a non-government and non-profit organization that was formed in 2001, and since then has been actively working in the area of health, and for the first time now in the area of rare diseases.

The project is financed by the European Union in the amount of 180.419,33 euros under the Instrument for Pre-Accession Assistance (IPA 2012).

Leave a Comment